AUB ScholarWorks

Bereaved parental evaluation of the quality of a palliative care program in Lebanon

Show simple item record

dc.contributor.author Saad R.
dc.contributor.author Huijer H.A.-S.
dc.contributor.author Noureddine S.
dc.contributor.author Muwakkit S.
dc.contributor.author Saab R.
dc.contributor.author Abboud M.R.
dc.contributor.editor
dc.date Aug-2011
dc.date.accessioned 2017-10-05T16:01:10Z
dc.date.available 2017-10-05T16:01:10Z
dc.date.issued 2011
dc.identifier 10.1002/pbc.23082
dc.identifier.isbn
dc.identifier.issn 15455009
dc.identifier.uri http://hdl.handle.net/10938/19366
dc.description.abstract Background: Palliative care (PC) is important in Pediatric Oncology as more than 20percent of children with cancer still die despite modern treatment. As a significant number of children reside in countries with limited resources; more research in PC is needed there. This study aimed at evaluating the quality of care provided to children with cancer at the Children's Cancer Center of Lebanon (CCCL) during their last month of life as perceived by the bereaved parents. Procedure: Between 2002 and 2007, 76 children with cancer treated at CCCL succumbed to their disease. Twenty-nine of the bereaved parents were interviewed at home about the symptoms and suffering experienced by their children during the last month of life, communication with the healthcare team, quality of care delivered, and recommendations for improving care. Results: Fatigue, anorexia, and pain were the most prevalent symptoms and edema was the most distressing. The overall communication with the healthcare team and the overall quality of care delivered was rated as very good to excellent by 86.2percent and 93.1percent of the participants, respectively. Parents suggested improving the organization of care, the communication, and the availability of human and material resources. Conclusions: This study is the first conducted in Lebanon to evaluate the quality of pediatric palliative care (PPC). The parents' experiences in our country were similar to those described in other countries, religions, and cultures. Significant strengths and weaknesses in the management of the dying children, from the parents' perspective, were uncovered and recommendations for improving practice were made. © 2011 Wiley-Liss, Inc.
dc.format.extent
dc.format.extent Pages: (310-316)
dc.language English
dc.publisher MALDEN
dc.relation.ispartof Publication Name: Pediatric Blood and Cancer; Publication Year: 2011; Volume: 57; no. 2; Pages: (310-316);
dc.relation.ispartofseries
dc.relation.uri
dc.source Scopus
dc.subject.other
dc.title Bereaved parental evaluation of the quality of a palliative care program in Lebanon
dc.type Article
dc.contributor.affiliation Saad, R., Children's Cancer Center of Lebanon, American University of Beirut Medical Center, Beirut, Lebanon, School of Nursing, American University of Beirut, Beirut, Lebanon
dc.contributor.affiliation Huijer, H.A.-S., School of Nursing, American University of Beirut, Beirut, Lebanon
dc.contributor.affiliation Noureddine, S., School of Nursing, American University of Beirut, Beirut, Lebanon
dc.contributor.affiliation Muwakkit, S., Children's Cancer Center of Lebanon, American University of Beirut Medical Center, Beirut, Lebanon
dc.contributor.affiliation Saab, R., Children's Cancer Center of Lebanon, American University of Beirut Medical Center, Beirut, Lebanon
dc.contributor.affiliation Abboud, M.R., Children's Cancer Center of Lebanon, American University of Beirut Medical Center, Beirut, Lebanon
dc.contributor.authorAddress Saad, R.; Children's Cancer Center of Lebanon, American University of Beirut Medical Center, Maamari Street, Beirut, Lebanon; email: rs49@aub.edu.lb
dc.contributor.authorCorporate University: American University of Beirut Medical Center; Faculty: Faculty of Medicine; Department: Pediatrics and Adolescent Medicine;
dc.contributor.authorDepartment Pediatrics and Adolescent Medicine
dc.contributor.authorDivision
dc.contributor.authorEmail rs49@aub.edu.lb
dc.contributor.authorFaculty Faculty of Medicine
dc.contributor.authorInitials Saad, R
dc.contributor.authorInitials Huijer, HAS
dc.contributor.authorInitials Noureddine, S
dc.contributor.authorInitials Muwakkit, S
dc.contributor.authorInitials Saab, R
dc.contributor.authorInitials Abboud, MR
dc.contributor.authorOrcidID
dc.contributor.authorReprintAddress Saad, R (reprint author), Amer Univ Beirut, Med Ctr, Childrens Canc Ctr Lebanon, Maamari St, Beirut, Lebanon.
dc.contributor.authorResearcherID
dc.contributor.authorUniversity American University of Beirut Medical Center
dc.description.cited ABBOUD M, 2008, PAN ARAB J ONCOL, V1, P48; Abu-Saad Huijer H., 2007, J MED LIBAN, V55, P121; Barnes E, 2005, EUR J CANCER CARE, V14, P373, DOI 10.1111-j.1365-2354.2005.00598.x; BRUCE P, 2006, J PALLIAT MED, V9, P163; Collins JJ, 2001, EUR J PAIN-LONDON, V5, P37, DOI 10.1053-eujp.2001.0278; Contro N, 2002, ARCH PEDIAT ADOL MED, V156, P14; Contro NA, 2004, PEDIATRICS, V114, P1248, DOI 10.1542-peds.2003-0857-L; Doumit M., 2008, CANC NURS, V31, P36; Doumit MAA, 2007, EUR J ONCOL NURS, V11, P309, DOI 10.1016-j.ejon.2007.02.008; Drake R, 2003, J PAIN SYMPTOM MANAG, V26, P594, DOI 10.1016-S0885-3924(03)00202-1; Goldman A, 2006, PEDIATRICS, V117, P1179; Hendriks AAJ, 2001, MED CARE, V39, P270, DOI 10.1097-00005650-200103000-00007; Hilden JM, 2001, J CLIN ONCOL, V19, P205; Hinds Pamela S, 2005, J Palliat Med, V8 Suppl 1, pS70, DOI 10.1089-jpm.2005.8.s-70; Hinds Pamela S, 2005, Int J Palliat Nurs, V11, P264; HUIJER HA, 2008, J MED LIBAN, V56, P86; Hynson JL, 2001, J PAEDIATR CHILD H, V37, P323, DOI 10.1046-j.1440-1754.2001.00674.x; Jones BL, 2006, J PALLIAT MED, V9, P774, DOI 10.1089-jpm.2006.9.774; KHALIL MB, 2008, J MED LIBAN, V56, P93; Mack JW, 2006, CURR OPIN PEDIATR, V18, P10, DOI 10.1097-01.mop.0000193266.86129.47; Mangione-Smith R, 1998, HEALTH SERV RES, V33, P1059; Maunder Eryl Zac, 2006, Int J Palliat Nurs, V12, P329; Meyer EC, 2006, PEDIATRICS, V117, P649, DOI 10.1542-peds.2005.0144; Meyer EC, 2002, CRIT CARE MED, V30, P226, DOI 10.1097-00003246-200201000-00032; Naifeh Khoury M, 2008, J MED LIBAN, V56, P83; Naja Zoher, 2008, J Med Liban, V56, P100; *NAT CANC I, 2008, NAT CANC I RES CHILD; PAPADATOU D, 2001, EUR J PALLIAT CARE, V8, P35; Rushton CH, 2004, AM J NURS, V104, P54; Sabatino CP, 1999, J LAW MED ETHICS, V27, P297, DOI 10.1111-j.1748-720X.1999.tb01465.x; Seecharan GA, 2004, ARCH PEDIAT ADOL MED, V158, P515, DOI 10.1001-archpedi.158.6.515; Steele Rose, 2006, Int J Palliat Nurs, V12, P576; Tan GH, 2006, J PALLIAT MED, V9, P332, DOI 10.1089-jpm.2006.9.332; Theunissen JMJ, 2007, PEDIATR BLOOD CANCER, V49, P160, DOI 10.1002-pbc.21042; Vickers J L, 2000, J Pediatr Oncol Nurs, V17, P12; Wolfe J, 2000, JAMA-J AM MED ASSOC, V284, P2469, DOI 10.1001-jama.284.19.2469; Wolfe J, 2000, NEW ENGL J MED, V342, P326, DOI 10.1056-NEJM200002033420506; WOLFE J, 2007, PEDIAT QUALITY LIFE; World Health Organisation (WHO), 1998, CANC PAIN REL PALL C
dc.description.citedCount 7
dc.description.citedTotWOSCount 4
dc.description.citedWOSCount 4
dc.format.extentCount 7
dc.identifier.articleNo
dc.identifier.coden PBCEA
dc.identifier.pubmedID 21394892
dc.identifier.scopusID 79958812550
dc.identifier.url
dc.publisher.address COMMERCE PLACE, 350 MAIN STREET, MALDEN, MA 02148-529 USA
dc.relation.ispartofConference
dc.relation.ispartofConferenceCode
dc.relation.ispartofConferenceDate
dc.relation.ispartofConferenceHosting
dc.relation.ispartofConferenceLoc
dc.relation.ispartofConferenceSponsor
dc.relation.ispartofConferenceTitle
dc.relation.ispartofFundingAgency
dc.relation.ispartOfISOAbbr Pediatr. Blood Cancer
dc.relation.ispartOfIssue 2
dc.relation.ispartOfPart
dc.relation.ispartofPubTitle Pediatric Blood and Cancer
dc.relation.ispartofPubTitleAbbr Pediatr. Blood Cancer
dc.relation.ispartOfSpecialIssue
dc.relation.ispartOfSuppl
dc.relation.ispartOfVolume 57
dc.source.ID WOS:000292301400024
dc.type.publication Journal
dc.subject.otherAuthKeyword Bereaved parents
dc.subject.otherAuthKeyword Children with cancer
dc.subject.otherAuthKeyword Communication
dc.subject.otherAuthKeyword Palliative care
dc.subject.otherAuthKeyword Quality of palliative care
dc.subject.otherAuthKeyword Symptoms
dc.subject.otherChemCAS
dc.subject.otherIndex acute granulocytic leukemia
dc.subject.otherIndex acute lymphocytic leukemia
dc.subject.otherIndex adult
dc.subject.otherIndex anorexia
dc.subject.otherIndex article
dc.subject.otherIndex bereavement
dc.subject.otherIndex brain tumor
dc.subject.otherIndex cancer fatigue
dc.subject.otherIndex cancer pain
dc.subject.otherIndex cancer palliative therapy
dc.subject.otherIndex cancer patient
dc.subject.otherIndex child
dc.subject.otherIndex childhood cancer
dc.subject.otherIndex clinical article
dc.subject.otherIndex clinical practice
dc.subject.otherIndex constipation
dc.subject.otherIndex cultural factor
dc.subject.otherIndex depression
dc.subject.otherIndex diarrhea
dc.subject.otherIndex distress syndrome
dc.subject.otherIndex dying
dc.subject.otherIndex dyspnea
dc.subject.otherIndex edema
dc.subject.otherIndex educational status
dc.subject.otherIndex evaluation
dc.subject.otherIndex Ewing sarcoma
dc.subject.otherIndex father
dc.subject.otherIndex female
dc.subject.otherIndex health care delivery
dc.subject.otherIndex health care organization
dc.subject.otherIndex health care personnel
dc.subject.otherIndex health care quality
dc.subject.otherIndex human
dc.subject.otherIndex income
dc.subject.otherIndex insomnia
dc.subject.otherIndex interpersonal communication
dc.subject.otherIndex interview
dc.subject.otherIndex Lebanon
dc.subject.otherIndex lymphoma
dc.subject.otherIndex male
dc.subject.otherIndex marriage
dc.subject.otherIndex mother
dc.subject.otherIndex nausea
dc.subject.otherIndex nervousness
dc.subject.otherIndex neuroblastoma
dc.subject.otherIndex osteosarcoma
dc.subject.otherIndex parental attitude
dc.subject.otherIndex priority journal
dc.subject.otherIndex religion
dc.subject.otherIndex resource allocation
dc.subject.otherIndex rhabdomyosarcoma
dc.subject.otherIndex school child
dc.subject.otherIndex spindle cell sarcoma
dc.subject.otherIndex synovial sarcoma
dc.subject.otherIndex vomiting
dc.subject.otherIndex Adult
dc.subject.otherIndex Bereavement
dc.subject.otherIndex Cancer Care Facilities
dc.subject.otherIndex Child
dc.subject.otherIndex Cross-Sectional Studies
dc.subject.otherIndex Female
dc.subject.otherIndex Hospitals, Pediatric
dc.subject.otherIndex Humans
dc.subject.otherIndex Lebanon
dc.subject.otherIndex Male
dc.subject.otherIndex Middle Aged
dc.subject.otherIndex Neoplasms
dc.subject.otherIndex Palliative Care
dc.subject.otherIndex Parents
dc.subject.otherIndex Professional-Family Relations
dc.subject.otherIndex Quality of Health Care
dc.subject.otherKeywordPlus OF-LIFE CARE
dc.subject.otherKeywordPlus FAMILY PERSPECTIVES
dc.subject.otherKeywordPlus CHILDREN
dc.subject.otherKeywordPlus CANCER
dc.subject.otherKeywordPlus END
dc.subject.otherKeywordPlus SYMPTOMS
dc.subject.otherKeywordPlus INTEGRATION
dc.subject.otherKeywordPlus NEEDS
dc.subject.otherKeywordPlus UNIT
dc.subject.otherWOS Oncology
dc.subject.otherWOS Hematology
dc.subject.otherWOS Pediatrics


Files in this item

Files Size Format View

There are no files associated with this item.

This item appears in the following Collection(s)

Show simple item record

Search AUB ScholarWorks


Browse

My Account